Inside the Mirror
When I was young, I had a compulsion to find out how things worked. This usually led to creative destruction. I know exactly how a music box works because I dismantled my jewelry box, tossing out the...
View ArticleThe Walking Gallery: Walking around the World
Though The Walking Gallery is Walking Around the World, based on current information we have no one walking in 20 states in the US. I say let’s change that! So if you know folks who should join us in...
View ArticleInvasion of the C.Diff
I often do things that frustrate my children. Whether is singing loudly off-key or ruffling their hair in front of their friends, my response to their complaint is always the same. “When I stop doing...
View ArticleCalling all Patient Advocates
Calling all Patient Advocates!!!Want to come to the Partnership with Patients Summit in KC September 21-23, 2012? Need help with funding to get there? The Society for Participatory Medicine a 501c3...
View ArticleThe Partnership with Patients Agenda
The Partnership With Patients Summit:The first patient summit in Kansas City supported by crowd-funding, designed using social media with art by Regina HollidayPatients, Providers and Health...
View ArticleBone Black
Ashes.They have always been part of our lives. We sang of them in our nursery songs. We heard our mothers speak of a princess who labored in cinders and dreamed of a prince. And as we grew, ash...
View ArticleEssays for Partnership With Patients Travel Fund
Today is the deadline for the Patient Travel Fund Submissions for Partnership WIth Patients Summit in DC. One requirement of submission was to post the essays onto a blog, so I am posting these...
View ArticleCerner on September 11th
I often paint at medical conferences in the back of ballrooms or on the exhibition floor. When I was painting at the HISA conference in Australia, a lovely woman came over to my easel. She looked at...
View ArticlePartnership WITH Patients
The Partnership with Patients Summit Sept 21-23:Kansas City Here we come!The conference hashtag is #cinderblocks on twitter Friday 21, The...
View ArticleBe Opened
I have a favorite word. I heard it in a sermon over 20 years ago. I even used this word as the title of my dear friend Kait B. Roe’s Walking Gallery jacket.The word is Ephphatha. This is word that...
View ArticleTrapped Energy at #PCORI
I spent most of Saturday October 27th at PCORI- Patient-Centered Outcomes Research Institute meeting Transforming Patient-Centered Research: Building Partnerships and Promising Models. It was the...
View ArticleThe Million Puppet March
I love people who will not abide injustice.I honor those brave regular folks who jump up and demand action even if they have no funding or safety net.I especially relate if they have gone through their...
View ArticleThe Conference That Felt Like a Hug.
So was Partnership With Patients September 21-23, 2012 in Kansas City a success?We proved it was possible for a loose confederation of patients to gather and organize with little time and little...
View ArticleDying at “Home”
Aunt Minnie’s house always smells of flowers, cinnamon and wonder. It always has. Tonight Minnie Wilgus died, but I know if I could magically transport myself to Enid, Oklahoma I could walk in that...
View ArticleA March of Happiness:Million Puppet March
I have attended quite a few marches in DC. There are often yelling, chanting people delivering soapbox speeches. People press one upon the other, trying to stay upon the sidewalk and not spill out...
View ArticleNeuCare
When I was little I cherished my Golden Books. I loved their compact shape and brightly colored pages. I would run my fingers over the shimmering gold covered spine of the book. I would beg my...
View ArticleWhy I paint on site.
I began painting at medical conferences in the fall of 2010. Kevin Kruse who ran ePatient Connections in Philadelphiaasked me if I would deliver a keynote speech. He also knew I painted murals, but...
View ArticleArticle 7
Dear patient advocates, e-patients and caregivers, We’re reaching out with an invitation to design a national patient agenda…created by the best, brightest, most committed and passionate doers and...
View ArticleAttack of the Living Meme
The Holliday family had a great Halloween this year. When my late husband Fred was alive, we had so much fun with this holiday. I always made our costumes and they were very creative, complex and...
View ArticleThe Sleeper
A couple weeks ago, I was listening to NPR and was amazed. Well, I am often amazed listening to NPR, but this was in reference to a specific program. It was Science Friday, the reputable Science...
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